It's been a whirlwind of a few months. Anastasia started her Remicade treatments at the end of March and it seemed to be working well, until we got to her dose that was 8 weeks apart. Then I noticed a regression.
Guess what...according to her bloodwork she had no trace of the medication left. So her next dose will be upped. She is starting to lose her hair again. Which means after 3 years we are going back to dermatology. It was a fight to get an appointment but thanks to Dr. B they fit her in.
But this is going to be a happy post, Yesterday we all took a trip to the new Legoland theme park that just opened up in Goshen. The best thing is that we totally surprised her!
I had bought our tickets last month, got a bit of a discount thanks to Hallmark perks, but I didn't tell her at all. The main reason is if I told her when we were going I would have heard her counting down or not sleeping until we went.
My plan to keep it a secret was simple. I lied and told her we had a fun day planned with my friend Amanda and her son (sorry Amanda lol). When we turned in she goes um...why are we turning into Legoland? I was like oh we're at Legoland? She says yes and Alex and I go, well we aren't meeting up with my friend we are going to Legoland!
She was so happy! We had a blast!
And yes it is a theme park so it is expensive but it honestly was worth it to have my daughter be able to be an excited kid for a day instead of having to worry about all the medical crap going on in her life.
No comments:
Post a Comment