Sunday, August 10, 2014

Go with Your Mommy (or Daddy) Gut




It's been almost been 2 months since Anastasia was diagnosed as having Type 1 Diabetes.  I'd like to say that it's getting easier...but there are days when I just feel so frustrated.  Today at work I was reminded about how we finally got diagnosed.  One of my co-workers was telling me about her cousin who had an ear infection.  Just like that everything came back to me.

June 6, 2013 Anastasia didn't seem like herself.  She was sleepy and very lethargic.  I thought it was a cold and went to my closing shift.  2 hours later I got a call from Alex saying he was going to bring her to the ER. We left there hours later with the diagnosis of an ear infection.  We had some antibiotics and she seemed to be a little better the next day.  

However on Tuesday June, 10 I still felt she wasn't right so we went to the pediatrician practice.  We found out she had a double ear infection.  We got more antibiotics...things still were not back to normal.

Then came June 13th....Friday the 13th, 2 days before Father's Day.  I went back to the pediatrians and spoke to her primary doctor who felt that we needed to go back to the ER and get bloodwork done.

Back we went and finally after being there for several hours we had our diagnosis.  As much as I hate that Anastasia is diabetic I am grateful we have answers as to why she was so sick.  

She was suffering so bad she went into kytoacedosis, which if left untreated results in death. So my message to all you parents out there is to trust your instincts.  If you feel your child is sick and is not getting any better keep bothering doctors until you have an answer. 


Friday, August 1, 2014

It was Bound to Happen Sooner or Later...


Honestly I was hoping this would happen later.  I've been quiet for a couple weeks because I've just been struggling with this whole thing.  My positive attitude has been squashed by a negative almost depression like state.  I think I just got very overwhelmed.  The bills have pretty much stopped coming in and we owe various medical institutes and personnel over 5,000.  I don't know where it is coming from to be honest...I know I can pay in installments, but frankly the income that I have I will be paying that off for years and years.
Today I was so relieved that the mail I got from Albany Medical Center was just a survey....the beginning part I can't even fill out because it's about the beginning part of her stay there and I wasn't there for that.  We still are having changes to our insulin injections and carb ratios.  Last weekend was rough because she just kept running low, they changed her long term insulin dose and her carb ratio and then she ran a little high, nothing drastic, but higher than it should be.

Now for a couple meals we have one ratio and for others it's different.  I'm hoping this weekend we won't fluctuate too much.  One weekend of not having to worry whether she is too high or too low is all I ask for at this point.

I do have to say I am very grateful for my Evergreen Chorus family.  I came to rehearsal very upset about how things were going and many of them just gave me hugs and resources where I can go for help in dealing with my sick child.

I hope this weekend I feel better...I am looking forward to my time off in a few weeks, even though I won't be making any money.


On another note, I'd like to use my blog to wish my inspiration for blogging Diana a Happy Birthday!  If it wasn't for her and her honesty I don't think I would have the courage to blog about my experience with Type 1 Diabetes and how it affects my family and I.