Thursday, June 22, 2017

So much for my little Superhero


So today we got more medical news for my little girl.  For those of you who don't know when we saw Dr. B for the first time she referred us to a GI for her bowel issues.  We went there last week and had to give stool samples to him for testing.  Well the results came back today and there apparently looks like there is inflammation in her colon and her pancreas is not absorbing as it should be.  

So that means......

she need an endoscopy/colonoscopy.  

Yet another strange test for such a little girl.  To say I'm overwhelmed at this point is an understatement.  I feel like there's just so much going on and I don't know which direction to go.  

It's just one more thing we have to deal with.  So now we have...
prematurity
type 1 diabetes
alopecia
possible hormone growth deficiency 
and who knows what else...

Not to mention the fact that I had our 504 plan meeting yesterday and I have more work to do to prep her for school.  

End of July Anastasia will have her 5 hour blood draw which will determine if she definatly has the growth hormone deficiency, about 18 days later she will have the endoscopy.

So if you pray please keep us in them, If you don't pray just send us positive thoughts....