It's here It's here...

Well after weeks of waiting for approval and trying to figure out how to make the fiances work Anastasia's pump arrived.  Now what do we do...we wait some more for a trainer to call and set up a time for us to learn how to use this high tech device.

I am a huge mix of emotions right now.  First of all it's competition week so I am stressed out about that.  Then the day after my chorus competition it's the March of Dimes walk so I have to make sure all my ducks are in a row with that before Saturday.

Just a lot going on, I'm trying to take it one day at a time, but if you know me you know that is hard for me to do.

Thanks for reading, I hope you know how much I appreciate it!

All Aboard the Choo Choo Train.....

Anastasia was about 1 when she discovered the Disney Jr musical short Choo Choo Soul.  I had known about them for a couple years because when we lived in our apartment and decent teeny bopper shows were on Disney Channel, I always ended up catching their video for Freeze Dance.  If you know anything about Anastasia you know she loves music in general.  So everytime the short came on, everything stopped so she could watch the TV.

I started finding the videos on YouTube and one morning I happened to find their live performance at the National Book Festival from a could of years ago.  I was impressed with it, especially at the fact that it was hot out, and here is Genevieve Goings dancing around with a Polyester Train Conductor outfit on and she is proud to do it to prove she can be a good role model without showing alot of skin.  I always said if they were in the area I would do my best to get Anastasia to a show.

Then the diabetes came...we caught Choo Choo Soul a couple times when she was hospitalized in Albany and there was really no reaction.  Usually she would be singing and dancing around, but this time nothing...

June 17th we were released from Albany Medical Center and we went to run some errands.  I wanted to thank my boss for being so understanding throughout the emergency and to let her know we were home.  We put our Choo Choo Soul CD on. When her favorite song Animals on the Farm came on, she started singing.  Alex and I both knew at that point that Anastasia was getting better.  I remember crying because I was so happy.

Fast forward to February of this year, on the Hudson Valley Moms board on Facebook a mom mentioned that Choo Choo Soul would be performing at a theater 40 minutes from us.  The tickets were a good deal so it was a no brainer that we go.

The show was today and I cannot tell you how wonderful it was!  It was so entertaining for the kids and parents alike.  I will never forget the expression on Anastasia's face when she saw Geneveive LIVE!  It was priceless and so happy.

The last song was their version of When You Wish Upon a Star and Geneveive said that her wish was to meet every child who came to the show afterward.  So after we waited on line to meet them.  I have to say they are the nicest people I have ever met.  I would post the picture that we took with my husband in it as well, but I look weird in it.

If you have toddlers or kids who love the show you will love it live.  Both Genevieve and DC were so personable and fun!

So Thank you Choo Choo Soul for a very memorable day!  My whole family loves you and I don't think that will change any time soon!!!!

FYI if you are curious about the music that's performed here is a youtube link to one of Anastasia's favorites Numbers

The Battle of the Syringes

So last week I did the usual refill for Anastasia's insulin syringes.  The picture in this post is the box we are accustomed to getting.  I go to pick up the syringes at Rite Aid and go along my way.  I finally crack into them about 2 days later and find they are not 1/2 units but full units.  I figure a mistake was made since the order numbers are very similar and I pray they will allow me to return the boxes even though I opened 2 of the packages in one of the boxes.

Well returning them wasn't a problem but we were told that BD no longer makes the syringe.  Well first I was told that the script was for full unit syringes which I know was wrong.  Why did the last refill give me 1/2 units when supposedly my script wasn't for it???

Anyway after much arguing Alex got involved and we left with 2 boxes of (supposedly) 1/2 syringes that had an 8mm needle (we were using 6mm previously)

At this point I am furious.   I don't want to stick Anastasia with an 8mm needle.  I know it's only 2mm longer but to a toddler that's alot.

So Alex and I decide to try to find another pharmacy to meet our needs.  We try Target first and the pharmacist found what we were looking for.

So I call Albany Med and get her script transferred over.  Target calls me and we go over all the insurance info and I'm told because I just picked up syringes last week they won't be covered.

Really??!! So Alex & I decide we'll eat the cost of 1 box and have it ordered.

Wednesday I go to pick up the syringes and the pharmacist tells me the script that was sent was for 2 boxes bit we only ordered 1.  I explain that the other pharmacist told me it wouldn't be covered so that was why 1 was ordered.  He then tells me that our insurance covered it & that he ordered the second box as well.

:-)

It's the little things some times...

So then he wants me to ensure that they are what I need.  I look at the box...and it's the same BD syringes we have been using for the past 8 months.  The ones Rite Aid claimed that BD doesn't make anymore. 

Oh and those 8mm syringes...when Alex opened them up he found they weren't 1/2 units either.

Gotta love it

A Letter to my daughter on her Third Birthday

To my Baby Anastasia,

Where did the last 3 years go?  I cannot believe that in a few short hours you will start the third year of your life.  I truly hope the next year will be better than the last.  You have had so many trials in your short life, trials I wish I could take away for you.  You were diagnosed in June with Diabetes, it felt so wrong to see you in a hospital again, after you spent your first 37 days there back in 2012.

You have taken this new challenge like a champ though.  Yes I know the insulin injections must hurt, as well as the finger pricks, but you are braver than I am.  I don't think I could ever bear the pain continually.  I hope that the approval for financial aid for your pump comes soon so we can stop giving you so many needles.

I love watching you grow, your little personality is coming out more and more every day.  You are becoming more outgoing and you definately are not as shy as you were last year.  Today you are clinging to your stuffed Lambie, and Pokemon Rabbit...who knows what you will cling to tomorrow as it seems to change daily.

You love chicken nuggets, fries and white dip (Ranch dressing).  I think you would eat it every meal if you could.  You love cooking with your stove top and any time you go to Alora, Sophia or Maya's house you play with their kitchen sets.

You are starting to become a little bratty at times, it hurts Mommy when you get like this.  I don't like it but I have faith that it gets better as you get older and understand a little more what you are doing.

I wish I knew what else to say, but I don't.  The only thing I can say is how much I love you and wish you lots of fun and happiness this coming year.

Love,

Mommy