So today we got more medical news for my little girl. For those of you who don't know when we saw Dr. B for the first time she referred us to a GI for her bowel issues. We went there last week and had to give stool samples to him for testing. Well the results came back today and there apparently looks like there is inflammation in her colon and her pancreas is not absorbing as it should be.
So that means......
she need an endoscopy/colonoscopy.
Yet another strange test for such a little girl. To say I'm overwhelmed at this point is an understatement. I feel like there's just so much going on and I don't know which direction to go.
It's just one more thing we have to deal with. So now we have...
prematurity
type 1 diabetes
alopecia
possible hormone growth deficiency
and who knows what else...
Not to mention the fact that I had our 504 plan meeting yesterday and I have more work to do to prep her for school.
End of July Anastasia will have her 5 hour blood draw which will determine if she definatly has the growth hormone deficiency, about 18 days later she will have the endoscopy.
So if you pray please keep us in them, If you don't pray just send us positive thoughts....
I don't pray but as a mother and a friend you have my thoughts and I hope everything works out for both you, her and your family <3
ReplyDeleteThanks Danielle. It just seems to be one blow after another. It's very draining and with her starting school in a couple months I'm just tired and I want to scream!
DeleteAnastasia is STILL a superhero as are you and Alex for learning and coping with every obstacle the 3 of you are facing! I'll keep you in my thoughts (and when I try to pray I'll include you all in them). <3
ReplyDeleteShe will always be my superhero. Im just so frustrates that she has to go through so much. It's overwhelming to me as a mom and just tiring. Yesterday at our 504 meeting I had a moment when I started crying because a year ago she was completely bald, and now she has so much hair compared to that. It got me very emotional.
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